An older man smiling as he uses a tablet on his sofa at home

Life After Stroke (LAS) Digital Pathway

Personalised stroke information, delivered digitally

A digital pathway, developed with Pogo Studios and Chest, Heart & Stroke Scotland, that gives stroke patients personalised information about their stroke and links them to support after they leave hospital.

Problem

Patients are generally discharged from Stroke wards with various paper leaflets relevant to their condition. Further information will be shared as necessary by clinical colleagues responsible for supporting the patient after discharge. The purpose of the project is to improve information sharing and communication between patients and clinicians, to improve patient experiences and give patients access to tailored medical information without adding to the administrative load on clinicians.

Solution

The area for patient benefit is to improve access to personalised information about the consequences of their stroke for each suitable patient. Tailored Talks will provide the digital referral route for all suitable stroke patients to CHSS by NHS staff, prior to discharge. This will also facilitate the actioning of a call back from CHSS to the patient, once they personally register with Tailored Talks, enabling a home visit. This will reduce the demand on constrained hospital staff to deliver personalised information and reduce costs associated with printing, information provided through the slide presentations will be “easy to digest” and personalised, family/carers can also access this digital information.

Key Evaluation Outputs Sought

  • Evaluate the acceptability of digital information delivery through LAS digital pathway among both patients and healthcare staff

    • Through structured verbal and electronic feedback from healthcare staff

    • Through structured verbal and electronic feedback from patients

  • Track and analyse patient-reported symptoms over time to identify trends and better understand the ongoing impact of stroke on individuals’ lives

  • Production of an evaluation report

  • Compilation of lessons learned which can assist when piloting other digital projects

Results

128 patients onboarded, 14% of 916 NHS Lothian stroke admissions: 97 at RIE, 14 at WGH and 17 at SJH. 30 NHS staff plus 6 CHSS staff trained to use the system; 20 NHS staff actively onboarded patients; 5.4 average patients per onboarder (range 1–39, median 2). Patient engagement: 47 (37%) registered on the system, typically within 5 days of onboarding; 26 patients completed 6 months; 1 used the CHSS call-back function; 0 actively withdrew from the pathway. Information before joining, of 51 respondents: 25% received no prior stroke information and 41% recalled verbal information only. Many patients reported limited stroke-related information before joining the pathway.

Project at a glance

REGION

NHS Lothian

STATUS

Completed

CLINICAL LEAD

Charlie Chung

CLINICAL SPECIALITY

Stroke

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